WATCH: Dad's New Career As Hospital Diagnoses Daughter's Rare Illness

EAST MEADOW, NY — A Long Island man, who is a retired FDNY EMS captain, made a career decision based in part on his daughter's rare medical condition. Jonathon Negron is part of the EMS team at NYU Langone in Mineola. His choice to work there was due to how they worked at figuring out why his daughter (eight years old at the time) was suffering from seizures.

"I knew that NYU was a quality institution based on my experience," he said. "It was definitely in my mind at the top of my list."

Doctors have been focusing on neurological issues as causes for the seizures, but at NYU Langone they took a different approach — hooking her up to a heart monitor. Ultimately, she was diagnosed with an unusual rhythm.

Negron got a pacemaker for a rare heart condition from the pediatric cardiology specialists at Hassenfeld Children's Hospital in Manhattan, including Dr. Frank Cecchin, who discovered the arrhythmia called paroxysmal heart block that can mimic epileptic seizures.

"Once they were gone, it was like a relief," she said.

Now 13, Kaitlyn is healthy. She plays lacrosse and runs track. Recently, she outpaced her father in the Tunnel to Towers run.

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